My Family is Hurting
By mysticmaggie
@mysticmaggie (2498)
United States
January 15, 2010 10:57am CST
because my husband may have to go to a nursing home. Six months ago, he suffered a stroke from which he did not recover. A week and a half ago, he had a 20-minute seizure and went by ambulance to the emergency room. He was kept in the hospital for a day and a half before returning home.
Since the seizure, he has lost control of part of his bodily functions, and the few gains he made after the stroke have decreased. He also seems deeply depressed, which in spite of the stroke, he was not before the seizure.
The loss of body functions I don't mind cleaning up after, but his skin is so thin, he breaks out in sores within an hour or two. I literally have to check him every few minutes to make sure he is clean. The sores are a major deal since he is also an insulin-dependent diabetic and can get infections very fast.
It's tearing me apart to consider putting him in a nursing home. We've had forty-three years together, two dating and forty-one married. He is my true soul mate and we've always faced every challenge together.
How do we get through this?
4 responses
@shell2784 (752)
• United States
15 Jan 10
I know there are some nursing homes that are set up like little houses... or even some rooms as big as decent apartments... have you called any of them to see if its something you two could do together. I would hate having to ship my husband off down the road to live.
I don't know what to do except pray for your situation and for your husband in general.
It must be rough on him too to go from the man in the house to the one who is constantly dependant on you. You're a good woman taking care of him like that. Sadly, I don't know too many women who would do the things you do.
Or how about a live in nurse? Have you looked into that at all?
Whatever path you choose is going to take a lot of love and patience, good luck
@mysticmaggie (2498)
• United States
15 Jan 10
We can't take the route of community housing for both of us because we also have a daughter with Down's syndrome to care for. She would not be allowed in the senior apartments.
I've worked in businesses that run homes for young women like my daughter. Not in a million years would I turn her over to them. I worked as Personnel Director and within the first six months I fired every employee except two who took care of our clients. They beat them, took their food allowances to throw parties, held wheelchair clients hostage in hot vans outside bars they attended and stole their clothing money. Since my experience there, I don't trust the system set up to take care of these precious people. That's also why I would visit my husband every day at different times to make sure he's getting the care he needs.
Although we are not wanting for food, clothing and housing, we have no extra for in-home care and foolishly did not opt for it in our insurance policy.
Looking after him is my pleasure as long I'm not afraid of doing more harm than good. Sadly, we have reached the point where being out of my care may be better for him. But, as always when he's been in the hospital, I'll be there almost every day so he'll never think I've forgotten him.
Thank you for your kind words and suggestions.

@mysticmaggie (2498)
• United States
19 Jan 10
Thank you so much, PastorP. Prayers are definitely needed. I am in contact with a church through my wonderful landlady. They come out to help us when it snows - digging out the driveway and cars. If I have heavy lifting to do, they are happy to help. It's a group of teen workers who spend their Saturdays helping anyone who needs it. With all the bad press about teens, these fellows put a whole new face on their generation and it's beautiful!
@Thoroughrob (11742)
• United States
20 Jan 10
I am so sorry to hear that. Is there a way that you can get some nursing care at home. I am sure that some of the depression is the fact that he is feeling so useless. I would check into both options of in-home care and nursing homes. Keep your spirits up in front of him, no matter how trying things are right now. He does not like feeling like a burden to you.
@sparksssss (478)
• Philippines
15 Jan 10
oh really?? oh sorry to hear that about your husband. its kinda sad when you see your soul mate is suffering for illness. just smile don't feel sad when you are in front of your hubby because he will also feel that you are also in pain. that is life everyone of us has trials and challenges. just pray to God to give you strength and also for your hubby to feel better and back to his normal life.
@mysticmaggie (2498)
• United States
15 Jan 10
Thank you, sparksssss, for your kind words and thoughts. I try to smile around him all the time. When I can't, I leave the room. Thank you, once again.



