My Husband is a Guinea Pig!
@DeborahDiane (40845)
Laguna Woods, California
November 4, 2015 11:46pm CST
Well ... my husband isn't exactly a guinea pig, but he has been on an experimental drug for four years for his chronic kidney disease and it has been a big help to him.
No one in the world has been on the drug longer than him, so he has been a guinea pig for the pharmaceutical company. They are very pleased with how well he has done, too.
The next two days, I may not be online much. We are going to spend a lot of time on Thursday and Friday meeting with a team of doctors from the pharmaceutical company who want to check him out, ask him questions about his diet, exercise, etc.
Some of you from Bubblews will remember that last January the drug company made of video of him and me talking about what an improvement the medication has made in his life.
If you don't see me around much the next couple of days, you'll know why! 
29 people like this
20 responses
@DeborahDiane (40845)
• Laguna Woods, California
5 Nov 15
While not a cure, this medication has already prolonged his life by several years, which is wonderful since he is in his 70's.
4 people like this
@DeborahDiane (40845)
• Laguna Woods, California
5 Nov 15
Thank you! I hope he continues to do well for a really long time!
2 people like this
@DeborahDiane (40845)
• Laguna Woods, California
9 Nov 15
@sofssu - Thank you! Prayers are always appreciated!
@1hopefulman (45111)
• Canada
7 Nov 15
I would love to see that video. Can we see it somewhere? All the best for continued good health!
2 people like this
@BelleStarr (61463)
• United States
6 Nov 15
He is lucky to be a guinea pig especially since it is improving his quality of life. I hope you will tell us more when you are back on.
2 people like this
@BelleStarr (61463)
• United States
7 Nov 15
@DeborahDiane We debated weather we wanted to do trials with my hubby and the Parkinsons but opted for traditional and naturopathic treatment but I wonder now if maybe we should have tried it. I was just afraid if he got the placebo we would have wasted a lot of time.
1 person likes this
@DeborahDiane (40845)
• Laguna Woods, California
7 Nov 15
Yes, it has really improved his quality of life. I cannot give out the specific name of the medication or other details until the FDA has approved it. I hope they do that soon, so other people can use it. It really has improved his life.
1 person likes this
@wetnosedogs (1533)
• United States
5 Nov 15
That is good news. Since he is kind of a guinea pig, I hope he's getting a good discount on the medicine
2 people like this
@wetnosedogs (1533)
• United States
5 Nov 15
@DeborahDiane ,
that's even better, especially if it helps him.
1 person likes this
@DeborahDiane (40845)
• Laguna Woods, California
7 Nov 15
My husband's condition and quality of life has improved so much on this medication. We are very fortunate that we found it.
1 person likes this
@GardenGerty (169448)
• United States
5 Nov 15
You know, I think that is a valid reason to be away from the Lot for a while Awesome that this medication is helping him.
2 people like this
@DeborahDiane (40845)
• Laguna Woods, California
6 Nov 15
We are very hopeful that someday it could help people all around the world. We spent hours talking to Chinese doctors today.
1 person likes this
@DeborahDiane (40845)
• Laguna Woods, California
5 Nov 15
Thank you for your prayers!
2 people like this
@slund2041 (3314)
• United States
5 Nov 15
You will be missed! Hurry back to us.
1 person likes this
@slund2041 (3314)
• United States
7 Nov 15
@DeborahDiane Good to see you back again.
1 person likes this
@DeborahDiane (40845)
• Laguna Woods, California
8 Nov 15
@slund2041 - I'm glad to be back. I'm trying to catch up a bit now!
@DeborahDiane (40845)
• Laguna Woods, California
7 Nov 15
I'm back, but it has been a long two days. I will catch up on notifications as soon as I can!
1 person likes this
@DeborahDiane (40845)
• Laguna Woods, California
5 Nov 15
It has been a relief to us, since they have already extended his life!
2 people like this
@Sheilamarie78 (2586)
• Canada
5 Nov 15
I hope it all goes well, @DeborahDiane. These appointments can be stressful, even when you are reporting good news. It's good he can get the medication for free, though.
1 person likes this
@DeborahDiane (40845)
• Laguna Woods, California
6 Nov 15
I agree it can be stressful. We've already talked to more than a dozen of the top kidney doctors in the world, and we have more to talk to today.
1 person likes this
@DeborahDiane (40845)
• Laguna Woods, California
7 Nov 15
@Sheilamarie78 - We are home now, but it is late and I am exhausted! I'll try to catch up with people this weekend!
@softbabe44 (5815)
• Vancouver, Washington
6 Nov 15
He is doing really well great way to be on top of things.
1 person likes this
@softbabe44 (5815)
• Vancouver, Washington
7 Nov 15
@DeborahDian Thats a plus right there .
1 person likes this
@DeborahDiane (40845)
• Laguna Woods, California
8 Nov 15
@softbabe44 - I agree! That has been a big plus for us.
@DeborahDiane (40845)
• Laguna Woods, California
7 Nov 15
We are so relieved that he has been able to be on this medicine.
@garymarsh6 (24005)
• United Kingdom
5 Nov 15
OH excellent and good luck to you both. I am pleased that it has helped your husband.
2 people like this
@DeborahDiane (40845)
• Laguna Woods, California
6 Nov 15
This has been a rewarding and interesting experience. I'm so glad this medication has done so much for his life!
@DeborahDiane (40845)
• Laguna Woods, California
5 Nov 15
Thanks! We're on our way to meet with them right now!
1 person likes this
@DeborahDiane (40845)
• Laguna Woods, California
7 Nov 15
@mrtoffee - Fortunately, we took the train to San Diego so we wouldn't have to drive. We got home late this evening, but we are exhausted, now!
1 person likes this
@zebra2222 (5268)
• United States
6 Nov 15
Hope for continued good news on the treatment.
1 person likes this
@DeborahDiane (40845)
• Laguna Woods, California
7 Nov 15
Thank you! He has been on it for over four years and it has really helped him.
@Blondie2222 (28610)
• United States
6 Nov 15
Good luck to your husband. Glad this medicine has been helping him. Maybe it'll be something i can take later down the road as I have stage 3 kidney disease but who knows.
1 person likes this
@SIMPLYD (90717)
• Philippines
15 Nov 15
Even if your husband has been made like a guinea pig , he at least benefited from it . That is so nice . Good Luck again !
@DeborahDiane (40845)
• Laguna Woods, California
6 Nov 15
I am grabbing a minute here and there to respond to people. It has been an interesting day!
2 people like this
@Marilynda1225 (91068)
• United States
5 Nov 15
Hopefully this medication will benefit other people who have the same medical condition as your husband. Glad that his clinical trial is working and hope the doctors are pleased with his results
1 person likes this
@DeborahDiane (40845)
• Laguna Woods, California
6 Nov 15
I will write more about our experience when I get home this evening. We've already met with more than a dozen doctors.
@ridingbet (66854)
• Philippines
7 Dec 15
well I hope your husband's health is better now. is he still receiving the same medicines?
