My Heart is Breaking

Thank you, I am doing the same but she will never get well. It is a progressive disease. I have prayed for a miracle when she was a lot better than this.

@akalinus , We never know miracles can happen at any time! Who knows what is destined in one's life?

@AKRao24 That would need to be one really huge miracle.

@akalinus Sorry to hear that. Please send our best to at least make them feel more comfortable.

I wish it could be so but this disease is terrible. It won't be better.

@crossbones27 Thank you. It is hard for her family, too.

@akalinus Keep us updated.

Thank you. I will when I hear more.

Thank you, that is the best thing anyone can do now.

@Lucky15 It does not matter if we can't accept it, it is happening and I can't stop it.

It just seems so cruel. Why do some people pass in their sleep at age 107 and others die such horrific deaths early, their lives crushed?

@akalinus it is hard to take right? I have the same questions before, acceptance wasn't welcome :(

Some of the times were not good and some were hilarious. Yes, they are all memories to cherish.

@DesirousDreamer I knew this day would come but it seems all unbelievable.

@akalinus Absolutely, it is the best thing to do.

I think it is hard for them. Her husband posted that reality is setting in. You know what will happen but it is hard to believe that the moment has finally come.

@arunima25 That is what is so great about myLot. There is always someone who cares.

@akalinus It is tough but we can not help other than accepting and moving on.

Thanks so much, Jennifer. I pray the same.

@akalinus It sounds like they will aid in her exit from this life. I hope that they offer some support to her family along the way.

Thank you for your kind thoughts. They will make her comfortable in hospice. They will give her whatever she needs for pain and depression, etc.

She did not deserve this. The other people do not deserve it either.

@akalinus Life is very unfair.

Thank you, it is a hard thing to go through.

We know why she has it. She inherited a gene that is passed down from her dad. It is a family type of ALS. There are probably others in her ancestry that had this awful thing. There is another type that they don't know how it is caused.

@cintol The familial type comes from an inherited gene. Other types are a mystery as to what causes them.

@akalinus Thats true, through genes would be able to tell that but some diseases don't follow through the genes. I am sorry for all that get these deadly diseases.

It would take a miracle for her to improve but God can do whatever pleases him.

@Courage7 Yes, not a ba place to be. I hope she feels at peace.

@akalinus Yes she is in Gods hands now.

Thank you, gladly appreciated.

She had a special place in my heart. We went through a lot of stuff in our families.

@Janet357 Time makes the pain grow a little less, but each loss leaves a scar.

@akalinus it will be hard for the meantime... but time heals

That is true, we really don't know answers. I hope they find a cure for this. I kept praying that they would find a treatment in time for her. They didn't.

It is a nasty and unpleasant disease. It is progressive which means it always gets worse, never better.

Thank you, Anna. That means a lot to me.

Thank you, that means a lot to me. Her quality of life is not good. She has been on a respirator for years. She is wheelchair bound and needs constant nursing care. She can talk and use her hands but cannot sit up unless propped, and she makes no sense when she talks. She just rambles and no one knows what she is talking about.

@akalinus , Sad indeed. But I have to do more research. I think the human brain has two functions that are separate from one another, in as much as a person may be perfectly able to understand what is said to them and yet be unable to respond in a comprehensible manner. I know a guy who is disabled, who works as a helper at a local retailer, who when you speak to him, fully understands but when he responds, his words do not come out properly. So, it is a good thing that your friend is able to at the very least, make an attempt at speaking. So Speech and Comprehension are separate functions. But don't quote me on that.

Some are more loathsome than others. Thank you for your kind words.

I am sure God has a plan. I hope they come up with something to save others from the same suffering.