Lupus... What can I expect?

Hi Jo,

So good to hear from you. If I do have it then I hope you are right. I have so many bad days now, I can't really work anymore in.LOL I'm thinking this may be the reason for many of my bad days. Thanks sweetie for your love and prayers. How are you doing? Say hello to John for me.
Love Ya
Leenie

The stitches were removed Thursday from the fifth operation on my jaw, so I'm doing well. John's hanging in there, as we continue to contact officials who might be able to help.
Are things at your house OK? Is there any way I can help you?
XOXO

Jo,
The waiting for you and John must be so very difficult. Just hearing from you makes all the difference. Dennis is still out of work but much more patient and very helpful.
Leenie

Hi drannhh,

Yes, this is why I haven't been very busy here. But no matter what, I can't stay away from all my wonderful friends for long. I will check into the Lupus Foundation. It's one place I've forgotten about. Thank you for the link and I have to say how right you are about the conscious breathing. Thanks for your very helpful thoughts. Hugss
leenie

Hey Elic,

Your neighbor is the one I can most relate to. I have so many health issues going on that I'm wondering if many of the issues fall within the borders of Lupus. Of course I don't have a definite diagnosis but it makes sense to me. Thank you Elic. Hugsss
Leenie

you take care of yourself leenie, she's still smoking and drinking, and with her medical problems she's not doing herself any favors

Don't worry Elic, I don't smoke and only have a beer or glass of wine on occasion. I do my best to take care. Thanks for caring.
leenie

You know Irsh Darlin, just hearing from you always makes me feel better. We all have issues we have to deal with on a daily basis and some days are harder than others but having our Mylot friends makes everything so much better. I hope you are having a good day. Hugs to you as well.

Love Ya,
Leenie

I'm glad Leenie love. Please...keep me posted, k?

Hatley,

I agree with you. I'm seriously not looking for a diagnosis. I'm looking for personal experience that may or may not apply to me. I trust that my Doctors will fill me in on what they find. Right now I have a need to learn more about this illness from people who have some kind of experience with it. For me, it's all about knowledge. Thanks for your advice Hatley. Hugsss
Leenie

Hi moonie,

They haven't determined yet for sure if I have Lupus but a lot of my blood tests seem to indicate it. I also have some of the symptoms. I guess I'll know more after I go to the rheumatologist. Thanks for the prayers sweetie. I'll keep you posted. Hugsss
Leenie

Thanks for your well wishes. I have researched it quite a bit but I was hoping to hear some mylotters who might tell me about their own personal experiences either of their own or a friend or family member. Thanks for your response.
Leenie

Hi Alice,
Don't be sorry. I'm glad you don't know about the illness. Hopefully you never will. In my first marriage, one of my sister-in-laws had it. All I remember is her having to take large doses of steroids and how her face blew up like a balloon. Back then no one knew much about it but now it is every where. Thanks for the blessing. Hugssss
Leenie

YW hon.
I read in the article that it's hereditary, does/did your mother have it?

I don't know of anyone in my family who had it. That's a good thing. Thanks Alice.

Hi mim,
I have been through quite a lot in my life but was hoping that would be the worst of it. But like you said if I do have Lupus then I will deal with it. At this point I have so many aches and pains and arthritis flare ups that I have probably been dealing with it for a long time now. Thanks for your input mim. Hugsss
Leenie

Mim,
It's so good to see your photo!!! It's a great picture!

Hey cyn,
How irresponsible of the doctor to make you think you have an illness that you don't. For me, the doctors only suggested the possiblity and sending me to the rhuematologist to make the diagnosis. I've read about the facial rash but I'm also familiar with rosacea. Like I told my Primary Doctor, I want to know what is going on with my body. Good or bad, I can deal much better with the truth. But at the same time I want a for sure diagnosis by the Doctor.
When I lived in California, I worked for a Pharmacist that was incredibly knowledgable about the medical field. I realized by listening to him how much I craved learning about anything Medical. When I learn what my diagnosis is I will be sure and let everyone know. I am so happy for you that the diagnosis was wrong for you. I hope it didn't cause you too much agony. Hugsss
Leenie