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Update on Am I really Crazy? email this discussion to a friend?

myLot reputation of 99/100. babyangie27 (1204)   ranked 12 out of 664 in anxiety2 months ago

I may be on to something here! After several responses to my last discussion and pyewacket and her helpful links. I contacted the EPA(Environmental Protection Agency) about what was going on in my house, last night.
This morning I began to call the local health department to get a free mold kit,which they do not have nor do the supply anything regarding ways of finding out if mold is my problem. They informed me to call the 211 United Way number and I did with the same results. They suggested I contact my Insurance company which I did and yet another brick wall.
So just as I was about to sit down and start searching yet again online for free mold kits or even cheaper ones...my phone rang. To my surprise the caller id said EPA GOVT!
I answered and a nice man began to tell me my email had been forwarded to him and he had a few questions if I was ready for them. "Shot" I said. So he asked me a series of questions about my home and my daughter's seizures and such. I gave him all I had and basically the same things I have already said here on Mylot. He asked about the friend I had who's son had had seizures and i told him I was unsure what kind of trailer she lived in and he asked me to find out ASAP.
He then mentioned the FEMA trailers pyewacket had mentioned in the previous post. And I told him I did read a bit about it. He said he didn't think the problem was outside my home but in the building materials used to construct my home itself.
He said he would be contacting the Wayne County Health Department and he would be speaking with me again SOON!
I explained I know I probably sound like a crazy mom but something isn't right and he replied "no you are fine" So someone believes me!
I found out from my friend that the woman that had the son that had seizures in this park lived in a simular home as mine.
I live in a 1996 Redman and I Googled my trailer and found 2 lawsuits regarding formaldehyde and health issues. A man bought a 1995 Redman and there were wood chips and saw dust in the VENTING SYSTEM that contains formaldehyde,which struck a cord in me since I had stated in my last topic that she seems to have more seizures when the A/C and/or Heat is running.
The only flaw is a doctor testified that formaldehyde levels decrease not increase over time. SO I am not sure about this being the real cause of her seizures.
Formaldehyde is found in new carpets,cleaners,sugar substitutes and a ton of other stuff.
So this may only be the beginning but I am hoping to hear from the EPA again soon. And i will keep you updated.
So do you think maybe this formaldehyde is the cause? Or am I chasing another golden goose?

 
 
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tags:  seizures, epa, formaldehyde, stress, deadly mold
 
1. myLot reputation of 94/100. Jennlk84 (2271)   ranked 170 out of 664 in anxiety   2 months ago

I remember I read your last discussion about this. I am SO glad you made some calls and actually had someone get back to you. I think it's great that you thought of this and are trying to better it. I Just hope you get good news back and that something can be done so she is ok again! Hang in there...I'm sure this could be somewhat time consuming.


myLot reputation of 99/100. babyangie27 (1204)   ranked 12 out of 664 in anxiety  2 months ago

I am hoping the EPA call me back and can come and do some testing in my home. I Googled home testing kits for formaldehyde and no lie some are as much as $100!

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2. myLot reputation of 95/100. dawnald (9714)   ranked 39 out of 664 in anxiety   2 months ago

I did a quick Google search on "formaldehyde and seizures" and a lot of things came up, so you might well be on to something.


myLot reputation of 99/100. babyangie27 (1204)   ranked 12 out of 664 in anxiety  2 months ago

I know I did too,I even found a forum where a few people had had children start having seizures shortly after moving into a trailer and also a new home with new carpets.


myLot reputation of 95/100. dawnald (9714)   ranked 39 out of 664 in anxiety  2 months ago

Wow - scary!

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3. myLot reputation of 85/100. camomom (3438)   ranked 57 out of 664 in anxiety   2 months ago

As I said in your last post, follow your gut feeling. This person you talked too obviously thinks there is a problem there too. I would follow up on it, just in case. I hope you find your answer's soon. Good luck and I'll be looking for updates.


myLot reputation of 99/100. babyangie27 (1204)   ranked 12 out of 664 in anxiety  2 months ago

Thanks camomom,I think I will email that man again and have it forward it to the one I talked to today. Since I did find out the information about the person's other trailer and all.


myLot reputation of 85/100. camomom (3438)   ranked 57 out of 664 in anxiety  2 months ago

That's a great idea.

My sister in law started having seizures in high school and doctors don't know why. She's 30 now and still has them.

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4. myLot reputation of 93/100. Hair_of_the_Dog (499)   ranked 149 out of 664 in anxiety   2 months ago

Hi Baby!

Great to hear you are getting somewhere. thumbup As far as I know formaldehyde is nasty stuff and like asbestos can be extremely harmful to your health. thumbdown

It's a process of elimination I guess and it's what you need to do to find the root cause of all the troubles.

Best Wishes to you. happy


myLot reputation of 99/100. babyangie27 (1204)   ranked 12 out of 664 in anxiety  2 months ago

Thanks Dog hun!
I sure hope I am on the right track,but if not then mold will be my next step. It's like a checklist I guess and I have to test everything to see what is going on.
I just wish the EPA would have called me back or the health department,I know I am trying to rush it but I want to know now ya know.


myLot reputation of 92/100. pixeltwistr (354)   ranked 425 out of 664 in anxiety  2 months ago

YAY for you!!! This can be a grueling process and not for the faint of heart but it will definately be worth it!! Just stay strong and follow through on everything! I know exactly how you feel wanting to know NOW! When you are there going through this with your daughter and then finally start to see a ray of hope it feels like everything is taking forever to happen....but just take a deep breath and hang on tight....now that the EPA is involved you will see some results!!!
Im almost positive it is going to turn out to be an environmental substance in your trailer causing this and wether it is formaldehyde, mold, lead or whatever they will find it. And you may even end up being able to get a financial settlement from the company that makes your trailer...
I know this isnt about money but you certainly could use some right now and your daughter has suffered for years unecessarily because of the trailer so you deserve a little relief!


myLot reputation of 99/100. babyangie27 (1204)   ranked 12 out of 664 in anxiety  2 months ago

The Wayne County Health Department called me this morning and the woman's first thing out of her mouth was it could be formaldehyde!
I was floored,only problem is her supervisor doesn't have a formaldehyde tester so he is trying to track one down.
And no it is not about the money but I am sorry someone should have to pay for what my poor daughter has went threw.

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5. myLot reputation of 99/100. leenie50 (1807)   ranked 61 out of 664 in anxiety   2 months ago

Honey,

I think you hit the right button. See, besides your friends here, you finally found someone who cares. Mold is not only annoying it can cause so many illnesses. I'm just sorry I didn't think of it sooner. Pretty soon, with the help of God and these people, you and your baby girls will be feeling better. I am so happy to hear this news.
Love Ya
leenei


myLot reputation of 99/100. babyangie27 (1204)   ranked 12 out of 664 in anxiety  2 months ago

Well the EPA and the health department are leaning more towards it being formaldehyde which is pretty scary when you think of it. The Wayne County Health Department called me this morning and that was the first thing they said.


myLot reputation of 99/100. leenie50 (1807)   ranked 61 out of 664 in anxiety  2 months ago

Maybe they will help you re-locate. Good luck Sweetie.

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6. myLot reputation of 98/100. Shar19 (2774)   ranked 63 out of 664 in anxiety   2 months ago

I think and I really hope that you are onto something major here. Good for you for sticking to your instincts. Keep moving forward with it.


myLot reputation of 99/100. babyangie27 (1204)   ranked 12 out of 664 in anxiety  2 months ago

Thanks Shar and I hope to find an end to this soon. Even if it is not mold or formaldehyde then I can at least start looking into other things.

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7. myLot reputation of 95/100. sid556 (10633)   ranked 103 out of 664 in anxiety   2 months ago

Hi there,
Yes, Pye is pretty helpful isn't she? She helped me tremendously on an issue a while back. She's awesome. Well I am so glad you are making progress here. Like we told you in your other discussion....It all sounds like it could be a possibility. Could it be the Formaldehyde? Could be. Even if it turns out it isn't, at least you will be able to rule it out. It could be something else in the trailer. Anything you do to track down the cause of your daughter's seizures is a step in the right direction in finding the answer. Don't give up. ok? And yes, keep us updated. happy


myLot reputation of 99/100. babyangie27 (1204)   ranked 12 out of 664 in anxiety  2 months ago

Well here's a small update The Wayne County Health Department called me this morning and first thing they said it FORMALDEHYDE,the woman I spoke to said her supervisor is trying to track a tester down so the can look at the levels in my home.
Even if it isn't that maybe they can find out what it really is.


myLot reputation of 95/100. sid556 (10633)   ranked 103 out of 664 in anxiety  2 months ago

I so hope you get an answer. There are a number of things it could possibly be. I think it is just awesome that you are being so pro-active on this. Keep up the good work!thumbup

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8. myLot reputation of 98/100. pyewacket (11600)   ranked 49 out of 664 in anxiety   2 months ago

Wow I'm glad I remembered about the Fema trailers and the connection with the formaldehyde connection and I'm glad that someone is taking a genuine interest and may help you. I'm also glad you googled that info about trailers in general and how some have had lawsuits due to the formaldehyde...like crap, what ARE the manufacturers thinking of when making the trailers to include hazardous materials in them

Okay another question....I've also done research into a lot of medical issues, including what ingredients are often found in vaccines...did you know many contain aluminum AND formaldehyde??? Has your daughter ever started seizures not long after getting a vaccine????


myLot reputation of 99/100. babyangie27 (1204)   ranked 12 out of 664 in anxiety  2 months ago

I tried to look back threw at her medical records and didn't find any connection between it.
I can't believe I didn't even know about this before hand. I lived in a 1974 trailer before this one and that one was falling apart! I tried to better my family and I might have been causing this for the last 3 years.

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9. myLot reputation of 99/100. Thoroughrob (7898)   ranked 36 out of 664 in anxiety   2 months ago

It sounds like maybe you are in touch with the right people. Hopefully they will spring into action and get your questions answered. You may be chasing, but when you are sure, it will eliminate or give you an answer. You will feel better knowing it has been checked regardless of what you find out. You won't always be wondering.

Next question is, if they do come in, do you have somewhere you can go, if they find something?

I really hope you get the answers you need.


myLot reputation of 99/100. babyangie27 (1204)   ranked 12 out of 664 in anxiety  2 months ago

That is a new problem in itself. I have no were to go if they do find something.
I am looking at it one day at a time. The health department contacted me this morning and hopefully once the find a formaldehyde tester they will be out here testing my home,then I will try to figure out where to go.


myLot reputation of 99/100. Thoroughrob (7898)   ranked 36 out of 664 in anxiety  2 months ago

I just hope they can give you some answers. At least if it is negative, they will put your mind more at ease. I just wanted to make sure you were thinking about that. All we can do is take one step at a time. It seems they are right on it, and that is a good thing.


myLot reputation of 99/100. babyangie27 (1204)   ranked 12 out of 664 in anxiety  2 months ago

Yea one step at a time. I am hoping if they do find something maybe they can relocate me or something. I was thinking about asking this other park if my trailer is positive for it if they can work with me to get in there,but not sure what I should do? How is your son doing?


myLot reputation of 99/100. Thoroughrob (7898)   ranked 36 out of 664 in anxiety  2 months ago

My son is ok. We go back to the DR. tomorrow. We were in therapy all day today. Hopefully, things will calm down and I will have time to call you Mon. or Tues. They are going to do Botox injections on the 26th, to try to relieve some of the muscle tone in his legs.

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10. myLot reputation of 98/100. zed_k4 (4534)   ranked 437 out of 664 in anxiety   2 months ago

Sorry because I was quite late to catch up on this.
So how are you coping now?
I hope the EPA contact you soon. Hope you are doing fine as I type this..


myLot reputation of 99/100. babyangie27 (1204)   ranked 12 out of 664 in anxiety  2 months ago

The health department called me this morning. The think it is formaldehyde and have to track down a tester so they can come and test my home. I am scared and excited all at the same time.
To know we might be able to find the cause of my daughter's seizures is a good thing but I am scared as I have no were else to live if they do find something.


myLot reputation of 98/100. zed_k4 (4534)   ranked 437 out of 664 in anxiety  2 months ago

I understand your dilemma, and it's best to just on standby as an alternative to look for a place to stay, just in case..

Update us on the developments of this case, yeah..

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