spina bifida

Tagged Discussions

A young boy gets a special costume for Halloween

George B Vieto @Deepizzaguy (122256) • Lake Charles, Louisiana 22 Oct 18

Blake Mompher, 5, who lives in Prospect Ohio was born with spina bifida which requires him to use a wheelchair since he cannot walk under his own power. Thanks to his grandfather who built for his grandson a special costume that...

blake mompher

megan mompher

spina bifida

4 responses •

5 people

Doctor appointment tomorrow

Blogger @gimitchelray (244) 5 Jun 17

I go to the doctor tomorrow to find out exactly when I am having surgery. They are going to put a new shunt (tube) in my head to replace to old one that broke. Even though I have had these types of surgeries before due to my spina...

doctor appointment

spina bifida

surgery

4 responses •

4 people

I am gong to tell a secret

AbbyGreenhill @AbbyGreenhill (45490) • United States 26 Dec 15

Yesterday evening my husband's son called and they chatted for quite a while. I had a feeling something was up as his wife has been pretty much missing from Facebook girl was on there like white on rice daily. I just thought it...

14 responses •

13 people

Anyone Know Anything About Spinabifida Disability?

Rosie @rosie230 (1700) 4 Jun 10

Hi My Lotters... I was just wondering if any of you here know anything about Spinabifida? I have a friend who was born with it, and the problem he has suffered with through his life is with walking, so he has crutches as an...

2 responses •

1 person

Physically disabled people VS Healthy people

jdmcclaskey @jdmcclaskey (11) • United States 22 May 10

I was born with Spina Bifida and because of that I have been wheelchair bound since I was about 11. I get a lot of people staring at me, pointing, and snickering when I am in public. I think there is this stigma about disabled...

spina bifida

4 responses

Special needs children

maximax8 @maximax8 (31042) • United Kingdom 1 Aug 09

My toddler son goes to a play group for children with special needs. Since he began going there the other parents have given me a wealth of knowledge. My son has spina bifida. He is unable to walk and he needs catheter care. His...

3 responses •

1 person

My disabled child

maximax8 @maximax8 (31042) • United Kingdom 26 Nov 08

Today an occupational therapist came to see my toddler son. He is 18 months old and he has spina bifida. I wanted to speak to her about the problems I have bathing my child because he hates having baths and slips around a lot. I...

12 responses •

2 people

My disabled child

maximax8 @maximax8 (31042) • United Kingdom 19 Jul 07

My son was born in May and he has spina bifida. I only found out at 36 weeks pregnancy. He has had to have two operations: one to mend his back and one to put a shunt inside his head. He does not have much movement in his legs. He...

disabled

spina bifida

16 responses •

10 people

Disabled Children

ChangingLivesForever @ChangingLivesForever (145) • United States 16 May 07

Anyone out there with disabled children? Mine are now young adults but would like further conversations. 1. Cystic Hygroma with a trach and g-tube. 2. Bipolar 3. Spina Bifida/wheelchair/shunt Thanks, Joanne

children

disabled

spina bifida

4 responses •

1 person

Do you knoww anyone with spina bifida?

maximax8 @maximax8 (31042) • United Kingdom 4 May 07

I am preganat and have just found out my baby will have spina bifida. The hospital people gave me some idea of what he may be like. I have never met anyone with spina bifida though.

spina bifida

9 responses •

2 people

Very bad news during pregnancy: Spina Bifida

maximax8 @maximax8 (31042) • United Kingdom 26 Apr 07

I am 36 weeks pregnant. Today I went to my local hospital for a scan of my baby. They told me my baby has Spina Bifida. I am surprised becuse they didn't pick this information up at my 20 week scan. I have taken Folic Acid all the...

pregnancy

shock

spina bifida

7 responses •

3 people

What's the most challenging part of life with spina bifida?

tendernesstour @tendernesstour (62) • United States 11 Mar 07

As an adult living with spina bifida, I'm primarily aiming this question at others living with spina bifida and/or those with spina bifida in their families. I'm mostly focused on myelomeningocele, the most severe form of spina...

1 response

Spina Bifida

Vallie26 @Vallie26 (349) • United States 5 Nov 06

Do you have Spina Bifida? Do you have any friends or family members that have it?

health

neurology

spina bifida

4 responses •

1 person

Chiari Malformation

Vallie26 @Vallie26 (349) • United States 5 Nov 06

Have you ever had Chiari Malformation surgery?