We Didn't Celebrate the 4th of July
@BelleStarr (61047)
United States
July 5, 2019 8:32am CST
No, we are not protesting, last year we had a wonderful cookout with my daughter and her family with all the boys including my son in law enjoying the pool. My mother also turned 103 on the 4th of July.
My mom died in September so this is the first 4th of July in my life that she wasn't in it. Which was hard for me but more than that is the fact that my son in law has been in the hospital for over 30 days.
On Tuesday night he was transferred from Hartford Hospital to Yale New Haven. We need some new eyes to look at his case. After all this time there is no definitive diagnosis. The NIH looked at the results of his lung biopsy and did not see lymphoma. Hartford insists that it is lymphoma.
It may end up being lymphoma but last weekend Hartford tried to pressure my son in law into a dangerous procedure that could have left him permanently on a ventalator, he refused. The risk was too high, this is Jacks's father, he has 5 sons and they need their father and my daughter needs her husband.
We used some connections we had to arrange this transfer. Hartford fought it at every turn. It was horrible. But it did happen and he and my daughter like their new doctors and the staff has been very nice even though it is the holiday.
I have been helping out where I can, keeping Jack overnight, and being a support to them. It has taken up my life for the last month and a half and it has knocked the stuffing out of all of us.
If you believe in prayer, please keep all of us in your prayers. We just want a diagnosis, so that treatment can start.
42 people like this
38 responses
@andriaperry (116860)
• Anniston, Alabama
5 Jul 19
The hospital change was the best thing you could have done.
I moved my sister from one, doctor and hospital, in Anniston that said she would die without a liver transplant, I sent her to Birmingham. Once there all she needed was food. Yes its always a fight.
Prayers its something simple that was overlooked.
As far as I know, had a nephew with lymphoma, that this usually shows up first in the groin or neck lymph nodes.
5 people like this
@BelleStarr (61047)
• United States
5 Jul 19
Thank you we are much more hopeful at this hospital.
1 person likes this
@LadyDuck (459353)
• Switzerland
5 Jul 19
I remember that you celebrate your Mom's birthday last year, I think to remember a sweet photo of her, I know you miss her. I am really sorry for your son in law. He did the right thing to refuse. Before trying something dangerous, it is a lot better to ask a second opinion, even a third if needed. I wish him the best and I send you good vibes.
4 people like this
@BelleStarr (61047)
• United States
6 Jul 19
Thank you so much, we are trying to stay hopeful
2 people like this
@LadyDuck (459353)
• Switzerland
6 Jul 19
@BelleStarr Your daughter must feel so concerned and depressed. I hope they can help him and avoid traumatic surgery.
2 people like this
@BelleStarr (61047)
• United States
6 Jul 19
@LadyDuck I think in the end the surgery will be necessary but I hope he can survive it.
2 people like this
@scarlet_woman (23465)
• United States
6 Jul 19
i know that feeling.in my case,our hospital insisted on sending him to massachusetts
for his heart attack-and kept trying to send me to network doctors up there for his recovery appointments.they knew damn well it was a hardship for me to get there.
but it seemed like the rhode island hospital just doesn't want to deal with heart failure patients anymore.
2 people like this
@BelleStarr (61047)
• United States
7 Jul 19
If it was Mass General they are a great hospital, we tried to get John in there but didn't hear back until after he had moved to New Haven. It is not convenient for my daughter but we want the best doctors available. Now with the follow-up, it seems they should have tried to find easier ones for you to get to.
2 people like this
@scarlet_woman (23465)
• United States
8 Jul 19
@BelleStarr it was actually charlton in fall river.
my husband hated the place.
1 person likes this
@BelleStarr (61047)
• United States
8 Jul 19
@scarlet_woman I am sorry when you are ill being in a place that feels right is so important
1 person likes this
@DaddyEvil (137142)
• United States
5 Jul 19
I'm very sorry for your loss and I hope your son-in-law gets the diagnosis and treatment he needs.
2 people like this
@BelleStarr (61047)
• United States
6 Jul 19
Thank you so much, we really hope so as well.
2 people like this
@BelleStarr (61047)
• United States
6 Jul 19
@DaddyEvil Wow that really is a bummer. Not that I like fireworks, I don't but still to be forced to stay indoors is not good.
2 people like this
@DaddyEvil (137142)
• United States
6 Jul 19
@BelleStarr You're welcome.
We haven't celebrated the 4th of July the last two years... It turns out I am allergic to the smoke given off by the fireworks. Around the 4th I stay in the house and set the air conditioner to recirculate the air without pulling in more from outside... The air should be cleared enough by tomorrow for me to be able to go back to work... I hope!
We haven't celebrated the 4th of July the last two years... It turns out I am allergic to the smoke given off by the fireworks. Around the 4th I stay in the house and set the air conditioner to recirculate the air without pulling in more from outside... The air should be cleared enough by tomorrow for me to be able to go back to work... I hope!2 people like this
@BelleStarr (61047)
• United States
10 Jul 19
The team of doctors is really good and hopefully we will have a diagnosis soon.
2 people like this
@BelleStarr (61047)
• United States
6 Jul 19
Thank you, hopefully, they will be able to get a good diagnosis soon.
2 people like this
@kareng (55228)
• United States
6 Jul 19
Sending prayers for your son in law, you and your family. I know how you feel with helping out. I have had my mom here for the last month and I'm worn out totally. I suspected she had dementia and we finally got the diagnosis. We have started treatments but there are several doctors involved and a lot of dr. appointments now.
2 people like this
@BelleStarr (61047)
• United States
6 Jul 19
I will keep you in my prayers as well. My mother had dementia and it is a horrible disease.
2 people like this
@BelleStarr (61047)
• United States
8 Jul 19
We are pretty sure that the diagnosis is not going to be good but once they identify it they can start to treat it and that makes us hopeful.
1 person likes this
@TiarasOceanView (70035)
• United States
6 Jul 19
So very sorry to hear all this Belle.
Of course keep you all in prayers there.
God is good.
And I know I lost my Mama in July last year..things have not been the same ever since.
2 people like this
@TiarasOceanView (70035)
• United States
6 Jul 19
@BelleStarr Thank you same to you Belle. No it does not get easier.
2 people like this
@BelleStarr (61047)
• United States
6 Jul 19
My sincerest sympathies, It never gets easier does it, I miss her every day.
2 people like this
@crazyhorseladycx (39515)
• United States
5 Jul 19
my heart goes out to all, hon. my deepest condolences'n the loss 'f yer sweet momma.
so glad y'all were able to get'cher son'n law transferred to 'nother facility. how awful fer all the family 'n friends, to sit helpless with the not knowin'. hopefully this new batch 'f docs 'n specialists can see their way through 'n find a remedy. don't blame 'im fer not doin' that procedure. most folks dunno y'ave the right to refuse treatments/tests, 's well 's fire yer doc's.
yes ma'am, i'll keep all very close'n heart ~ sendin' healin' hugs
2 people like this
@BelleStarr (61047)
• United States
8 Jul 19
Thank you we are going to need all the prayers to get us through this next week.
1 person likes this
@1creekgirl (40622)
• United States
5 Jul 19
I can sure understand how hard this 4th is for you and your family with the concern about your son in law and missing your mom.
My prayers are added to all the others for God's healing touch for your son in law, for wisdom for the doctors, and comfort and strength for all of you.
2 people like this
@BelleStarr (61047)
• United States
7 Jul 19
Thank you, I think now we want prayers for the skill of the doctors, they are going to be discussing the procedures that want to perform tomorrow with my daughter and her husband. He is one of the best thoracic surgeons in the state.
2 people like this
@1creekgirl (40622)
• United States
7 Jul 19
@BelleStarr Your son in law and all of you have been in my prayers today. May God guide the doctors tomorrow.
1 person likes this
@moffittjc (118587)
• Gainesville, Florida
6 Jul 19
Good call on the hospital change. Sometimes the best thing we can do is change settings and get a new look at things. I hope the staff at YNH find some answers. In the meantime, I will keep you and your entire family in my prayers.
2 people like this
@BelleStarr (61047)
• United States
7 Jul 19
We already love the doctors there, they are quite amazing and so forthcoming.
2 people like this
@moffittjc (118587)
• Gainesville, Florida
7 Jul 19
@BelleStarr That is great that you found a better place with more compassionate care.
2 people like this
@BelleStarr (61047)
• United States
8 Jul 19
Thank you very much it is appreciated
1 person likes this
@rsa101 (37968)
• Philippines
5 Jul 19
I hope that everything is in order now that you have transferred to a new hospital. It’s really hard to celebrate the holidays where there’s someone missing in the family and there are others who need your support for them. My prayers for your son in law.
2 people like this
@rsa101 (37968)
• Philippines
9 Jul 19
@BelleStarr Oh why the delay in the diagnosis? I guess they can finally come up with one inthe coming days so the proper treatment can be given to him.
@BelleStarr (61047)
• United States
8 Jul 19
Still no diagnosis so keep the prayers coming
1 person likes this
@simone10 (54189)
• Louisville, Kentucky
6 Jul 19
@BelleStarr you are very welcome! Please keep us updated on how he is.
2 people like this
@RasmaSandra (73749)
• Daytona Beach, Florida
7 Jul 19
You and your family have my prayers and I hope you get the answers you are looking for.
2 people like this
@BelleStarr (61047)
• United States
8 Jul 19
Thank you, if we at least get a diagnosis we will be happy to start treatment of some sort.
1 person likes this
@BelleStarr (61047)
• United States
7 Jul 19
Thank you, prayer is all we have now until we get a definitive diagnosis.
2 people like this
