My husband cannot sit in wheelchair for long rear end hurts   

We both have to go to the wedding as it is our younger son who is getting married. I was thinking of taking along an extra throw cushion but it is not the same size as the wheelchair. I do have a gait belt, and we might get someone to help move him to another seat. We are going by handi=transit.
Of course, the other problem is when he wants to go to the bathroom. I am not exactly comfortable taking the urinal with me and going into the men's with him and I am sure that he would be uncomfortable going into the ladies.

I don't think our Hoyer comes apart. It is the one with the electric raiser up on it. We did put an extra cushion inside the cushion part of my husband;s wheelchair so we will see if that works. He says he is a bit more comfortable, but you never know.

We were able to go to the wedding but could not stay for the whole reception, that is, we missed the dance. I did not want to go myself, because my son is also his son. I was not married to someone else when I adopted our sons. I was married to my husband. I wanted him to go to the wedding because well who knows how long my husband will live? The place was power wheelchair friendly and he made sure not to drink any coffee. We have home care and respite care. I will try to get more help, but we have to think about that. We still think it is ALS, as that is the only disease that fits.

He also slips down because the cushion is too smooth. I wish that there was an upholstery stitched on it, but they want something that is easy to wash and does not have to be dry cleaned, although I think there are washable fabrics that are not as slippery. We were able to attend the wedding and part of the reception. But we had to leave by ten (else we would turn into a -- ) no really, the Handitransit only goes to ten on Saturdays.

We talked about a water cushion, water bed, or air bed, but for some reason, they do not seem to work. It is because he has no muscles left in his rear end. We were able to attend the wedding but had to leave the reception early and he did not feel good for the next couple of days. What he finds that helps is to have a blanket under him when he sleeps, but the power wheel chair and his regular chair have smooth fabric and that does not help.

I think you have als confused with alzteizmers. Als is Lou Gehrig's disease and their brain function works pretty well. They remember everything. I am going to take along a cushion and the belt and see if there is someone there to help him.

well I thought you was just doing a short form for Alzteimers . Soo I misunderstood.

A lot of people do. They think once you get old, you lose your memory and become senile. They forget about Lou Gehrig's or Als and yet not only did Lou Gehrig have it, but David Niven, so it is a disease that famous people get and because of that they should at least try to find a cure, but right now once you get it, you will die in about three years or five or ten if you are lucky.

Very sad that they havent found a cure for it as wasnt Lou a ball player in the 30A?
or was it the 40;s?

I think it was in the 30s. Anyway he was the first who gave it publicity. Before people just died and no one cared or they blamed it on something else like smoking or bad living. but since Lou Gehrig was a baseball player and had to keep fit they could not use that bad living excuse.

thats true I have watched his story in the movie a few times it is a very hard illness to have thats for sure!

It was so sad. His parents apparently had no other children either they died young, got sick, or whatever. So it was ironic that the only child they had that survived had als. At least in my husband's case, he has other brothers and sisters, but to know that Lou Gehrig had no other kin and he and his wife did not have any children.

yes sad!

You know that sounds like the thing that would help. I will have to talk to Home Care the next time. Also he wants a cushion that does not slip off the power chair or his rise up chair.

We are using a soft blanket over the mattress that is one of those miracle form, and on top of that we have the mattress cover, on top of that the regular bed sheets, and on top of that a blanket. So now that creates a problem, since when fall arrives and it gets cool, I will have to buy two extra blankets to go on top. And I thought I had sensitive skin.
We could look for a specific cushion for the power chair cushion and the lift chair, but the cushion cannot slip.
That is the whole problem.

So a rubber ring's no good then?

It would not be. It has to be something that will also keep him from slipping. I did hear that olive oil might work, so perhaps I will try that.

Isn't oil rather slippery though?

If it is rubbed in that is all right, but the health care worker came over and she saw how he was sitting on the lift up chair, sort of reclining, and she figured that it is now time for him to get a reclining power wheelchair. I told her that if there was a way to slide off of it, he would, but she said that it would take the pressure off his b*m, and distribute it all over and he would feel more comfortable.
It might take months before we get the chair, but at least he will be more comfortable.

I suggest that he uses two herbs, Ginseng and Comfrey. I'm a Herbalist so have reason for saying this. Ginseng will energise and help his whole body, mind and spirit. Comfrey will deal with the sore and achy areas. Ginseng should be taken internally and Comfrey as a cream or ointment externally.

If he suffers from pain he could try Feverfew, St John's Wort or both.

If he needs to relax he could use Valerian, Skullcap and again Beautiful Ginseng!

Herbs are not like medical drugs in that they don't mask symptoms and seem like a fast cure. They actually deal with the causes of illness and repair the body. So don't expect a sudden miracle cure (except with Comfrey externally, that's pretty darn quick and surprising!) And come to think of it Ginseng had a rapid effect on me.

Let me know if you want more advice.

We got him a thicker cushion. His muscles are going away because of his als so the herbs will not do that good. it is not like diabetes or a heart condition where you ate the wrong food and you are paying the consequences. he does have to eat more vegetables and fruits now. and that helps.

Right now he lays down for a while, but it will soon be that will be all he does. They say the disease is like that. Eventually he will become bed ridden.