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myLot reputation of 99/100. Thoroughrob (9552)   ranked 1 out of 20 in cerebral palsy 5 years ago

For the last two years, we have been trying to get my son equipment that he needed to help him learn and get around! We finally have gotten all we have been trying for. It all came within the last 3 weeks. Three weeks ago, on the same day, he received his talking device, and touch screen monitor for a computer. Today, he has gotten his Power wheelchair, and a brand new computer. I am so glad he has it all now. It just seems funny that for 2 years we could not get anything and now we get it all in 3 weeks time. He should be in heaven. Isn't it funny how some things just fall into place all at the same time? We will definitely be busy!!

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rainbow (3926) response was accepted on 4/5/2007.
denotes best response, click it to go to the best response.
tags:  blessings, equipment, happiness, son, baby thing
 
1. myLot reputation of 68/100. visitorinvasion (3623)   5 years ago

That is so cool, Rob. I'm really glad for you and your son. I'll bet his newfound freedom is making his life a lot more fun. Enjoy your new reason for keeping busy :)

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2. myLot reputation of 94/100. payingforschool (564)   5 years ago

I know how you feel. It was like that for us, getting support, funding, and therapy. For years I couldn't even get a diagnosis for my son ... and every day was a struggle. Now, there are actually weeks when I look back and think, 'That was actually a GOOD week' ... becuase we finally have the support we need.

It just goes to show you - don't gve up pushing and advocating for what your child needs ... because eventually it comes. It feels a lot like that last piece of the puzzle going into place.


myLot reputation of 99/100. Thoroughrob (9552)   ranked 1 out of 20 in cerebral palsy  5 years ago

It seems like such a long time coming. I have learned to talk the Drs. into getting some things he is going to need before he needs it. That way when we do, it is hear because it takes so long to get. When my son was 8 he was 50 lbs. and was easy to get around. In 3 months he gained 35 lbs. because of medication. We needed some things to help us in the bathroom and around the house. It took 6 months. We were in a mess.

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3. myLot reputation of 99/100. brendalee (5064)   ranked 6 out of 20 in cerebral palsy   5 years ago

Wow, that is great news. I am so happy for you and your son. I hope that they help make your lives easier and happier. You know that saying..."Good things come to those who wait". I'm glad you wait is over.

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4. myLot reputation of 99/100. sherrir101 (2918)   5 years ago

Miralces do happen. And all in the time they are supposed to. Why, I have no clue. I am so happy for your family. I know it must be a blessing.

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5. myLot reputation of 98/100. byfaithonly (6284)   ranked 7 out of 20 in cerebral palsy   5 years ago

Oh what a blessing it sounds like the world is coming together for your son. I pray he will gain greatly from all the new equipment.

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6. myLot reputation of 93/100. bwrattybaby (5226)   5 years ago

God works miracles all the time we just got to trust in God's powers. God's will be done. He had His reasons for not giving you the things you needed. Maybe He was waiting cause He knew that a better thing was on it's way. God has His reasoning for all things not wise to question God and His will. God will provide to those of us who are willing to wait for Him to provide.Example for a couple of months we have really been out of everything and I mean everything so I have been praying and praying and then just a week or so back God sent us the money we needed to take care of everything we needed. I mean we were so broke we had to borrow toilet tissue. Now that is broke. But God had His reasoning for this and I will not question God. Just take things in faith and God will provide. Glad to hear God has worked these miracles in your life and your son's life. Hope you have a great day/evening.


myLot reputation of 99/100. Thoroughrob (9552)   ranked 1 out of 20 in cerebral palsy  5 years ago

That he has. Thank you.

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7. myLot reputation of 96/100. babyhar (1311)   5 years ago

That is so very wonderful that these things finally had shown up for your son! I can only imagine how thankful you must be!

It must also help make your son's life a little bit easier because of these things that he will be able to use. It is always a nice surprise when things eventually fall in to place. I am glad they had for you, as well as your son! That is such wonderful news!
I wish you all of the best! xx

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8. myLot reputation of 99/100. melanie652 (1652)   5 years ago

Great news! Yes, it is interesting how things just fall into place. I've decided that's how you know something is just meant to be. Keep us posted on his progress!

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9. myLot reputation of 98/100. rainbow (3926)   5 years ago

Wow, finally your son gets the equipment he needs - fantastic, you must all be so excited!
How is he getting on with the speaking machine, you said it was a big help and he was getting better at using it before. The touch screen must be brilliant for him too. I cannot even begin to imagine how much a power wheelchair will help you all on trips out.
Have fun with his new gadgets, thay should make life easier too.

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myLot reputation of 99/100. Thoroughrob (9552)   ranked 1 out of 20 in cerebral palsy  5 years ago

We finally have started getting everything done on the device and we can't get him to put it up. Even at bedtime he has a fit. I am really trying to enforce the fact that it is not a toy and make him tell me what he wants and tell me things with it. It just is really cool and going to take a little while to really understand that he can talk to us.


myLot reputation of 98/100. rainbow (3926)  5 years ago

I truly am happy for you all, the chance to communicate and get around easier is a fantastic step forward for you all!

Thank-you so much for giving my your best response!

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10. myLot reputation of 98/100. JoyfulOne (5049)   5 years ago

That is so wonderful! I'm so happy for your son and your family, it will all make such a difference for him! He has *got* to be in heaven seeing all the new possibilities opening up for him and bringing him a whole new world. Kinda funny how it all came at the same time...the wheels of bureaucracy go really slow sometimes, don't they?! Much happiness to you and your family thoroughrob!

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