cystic fibrosis

Tagged Discussions

Lucinda is alive but someone else has her heart

Judy Evans @JudyEv (382483) • Rockingham, Australia 27 Dec

I hope you’re all recovering from a joyous Christmas, if you celebrate. Soon we’ll be facing a new year with new challenges and experiences. I read an incredible story today about a young girl who had cystic fibrosis. To continue...

14 responses •

11 people

Cystic fibrosis awareness day on facebook

lindaharding627 @lindaharding627 (1442) • United States 14 Feb 11

Today has been designated cystic fibrosis awareness day on facebook. In honor of people who suffer from this illness or who have passed away from it, people are being asked to forego the famous red outfit today and instead wear...

cystic fibrosis

1 response

I will not be doing this again!!

katsmeow1213 @katsmeow1213 (28716) • United States 17 May 10

I started getting in better shape a little over 6 months ago, and at one point while going for a run I thought, why not put my new found fitness to good use. That day I came home and started looking for some local 5K's to run for...

causes

cystic fibrosis

donations

9 responses •

3 people

Why do they cough up blood?

ladybugmagic @ladybugmagic (3978) • United States 16 May 10

Is it scar tissue from the lungs? And, also, why do their fingernails not have any beds? My bf went to pick us up dinner the other night, and there was a girl in her twenties waiting on him who asked if he had CF. He told her...

2 responses

Where would you go for donations?

katsmeow1213 @katsmeow1213 (28716) • United States 28 Apr 10

I've signed up to participate in a 10K walk for Cystic Fibrosis. The walk is coming up in just a few weeks, but I'm barely half way to meeting my donation goal. I'm promoting it on Facebook, I have a link here on my Mylot profile,...

causes

cystic fibrosis

donations

1 response

"You just wallow in it, don't you?"

ladybugmagic @ladybugmagic (3978) • United States 27 Mar 10

That is something my boyfriend's mother said to him when he ripped one. One of the more unfortunate parts of cystic fibrosis is the poor digestion, which leads to really foul smelling gas and poops and poor weight gain. I...

cystic fibrosis

poor digestion

2 responses

Lung cheese and other euphemisms.

ladybugmagic @ladybugmagic (3978) • United States 7 Feb 10

My boyfriend and I have cute names we made up for his sputum: lung cheese, or in the attached photo: foating phlegm. My most recent analogy was "gum stuck to velcro". I keep trying to urge him to use his vest. That is his least...

1 response

Have you ever joined a walk/run for a cause?

katsmeow1213 @katsmeow1213 (28716) • United States 17 Jan 10

I've just registered for my first ever walk for a cause! I joined a 10K walk for the Cystic Fibrosis foundation. It won't take place until May, I have until then to raise at least $150 in donations. Cystic Fibrosis is very close...

cystic fibrosis

raise money

walk for a cause

17 responses •

2 people

Sixty-five roses. Please keep this discussion moving, no matter what date it is.

ladybugmagic @ladybugmagic (3978) • United States 30 Nov 09

I did a search using "cystic fibrosis" as the keywords, and a few discussions popped up, but in some cases, haven't been responded to in three years. That three year lull is frightening. CF has an average lifespan of 37 years,...

caregiver

cystic fibrosis

treatment

5 responses •

1 person

Cystic Fibrosis

sunshine5637 @sunshine5637 (3) • United States 19 Jan 09

Hi there! I just joined MyLot and am pretty much new to the "social networking"...but I decided to see if there are any of you "CFers" out there? Or do you know anyone who has it? How old are you (or your friend(s)) and how are...

cystic fibrosis

health

networking

1 response

Carpe diem; I now know what it means

cyberfluf @cyberfluf (4996) • Netherlands 28 Aug 08

I have been in contact with a girl over the internet for years and years, we had very good contact. We send each other cards but I never had the guts to call her and we allways were planning on meeting each other but it never...

7 responses •

3 people

Have you ever wondered what death feels like?

Jess @JJ4Ever (4693) • United States 28 Jan 08

I'm having morbid thoughts today. My cousin has been in the hospital for a couple weeks and has been in critical condition for the last week. (She has cysticfibrosis.) A couple hours ago, she had a massive stroke and isn't...

10 responses •

3 people

Cystic Fibrosis

cheermom07 @cheermom07 (2) • United States 1 Jan 07

I have a son that was diagnosed very late in life with Cystic Fibrosis. He was 14 years old and it took our Pediatrician's Physician's Assistant to help us diagnose his condition. My son is now 18 years and his health is only...

cystic fibrosis

high school diploma

2 responses •

2 people

Does anyone or anyone in the family have Cystic Fibrosis

DeborahGalasso @DeborahGalasso (275) • United States 11 Dec 06

My father does. He is one of my heros. He was suppose to pass on at 9 then 15 yrs, then 18, then 25 and then 30 now they say he wont see his next birthday but i know he will, he is strong! he works full time, hes not suppose to...

cystic fibrosis

disease

1 response

Cost of prescriptions

snipe1038 @snipe1038 (15) • United States 8 Dec 06

My Grandson has CF and I went to pick up his medications the other day because his father has not gotten started on the new insurance plan yet. For just 2 of the items he needed the bill was $300 WOW! I asked the pharmacist about...

1 response

My husband's Dr. suspects he has cystic fibrosis.....

bumblebee03 @bumblebee03 (121) • United States 3 Dec 06

and wants him to have a spinal tap done to determine diagnosis. My husband has already been through a lot. After almost two years of tests, lab work,specialists, surgeries and medications he was diagnosed with diabetes and Lupus....

1 response •

1 person

cystic fibrosis..

selfmotive @selfmotive (15) • United States 24 Nov 06

Do you know about it? What it is and what it affects?

cystic fibrosis

disease

terminal illness

2 responses

Poetry Feedback Needed

Vallie26 @Vallie26 (349) • United States 12 Nov 06

I am a poetry writer and I would love any feedback. I cry out to those I've left behind try to calm their pain with words of a different kind I'm happy now I can breathe again it is beautiful here a new peace...

12 responses •

3 people

Does anyone have any info on Cystic Fibrosos??

mtdewgurl74 @mtdewgurl74 (18151) • United States 23 Sep 06

My niece was born with cystic fibrosis she is a 1-1/2 and only weighs just now 17pds. but she is sickly all the time and always...

cystic fibrosis

2 responses