Don't You Hate It When No One Seems To Understand?

Personally I never meant here, and I do value everyone's opinion as a lot of the opinions and feelings and many times prayers here from people who have been what gets me thru in life. What I am referring too actually, is people I know in person who I work with who might have problems Health wise, even sometimes worse than mine, that are always very judgemental and do not always seem to understand. Often I know I would not want to be in their shoes, so why are they always judging mine?

oh savypat take care here, i am also a diabetic and I have met people who think they have a right to tell me what to eat and not eat, 'and other things of that nature. I think she just wants to show that its not right or kind or good of others to judge us and try to tell us they know all about diabetes when they don't. anyway i see you do care for Tina and she has been through a lot. I am not scolding really I don't think. just did not want to see a fight between two of my mylot friends whom I like both of you a lot.She has been through a lot with her wound. Us diabetics for some reason take an extra long time to heal I know,.

If I didn't care I wouldn't bother. I will not fight it was only my intent to have her see the patterns in her discussions. Believe me I have nothing to win or lose here. I have two grandchildren who are diabetics and have been all their lives, so I do know something about this problem also. If I could I would give Tina a big hug and then shake her for allowing her health problems to rule her life. Especially since she has so much to live for and there are so many more places to spend that energy. Blessings

Oh I know... Because most of the time, they are going thru something themselves and feel it will help them, so that would help me, or not trusting my faith and belief in God. Many times I would Love to see them have to endure all of this that I have too, and see if they could do it.

Yes, I do believe that this is the truth. Sometimes I just think others like to butt in thinking they are really helping when in truth they do not really know all about the other person's situation. I feel until they have walked in my shoes, they will never know, and God is the one in control.

yup saying walk a mile in my shoes and see how ya feel

Yes, I know that many times it can sometimes be Doctors not knowing what is Best that ends up either making someone's Health better or worse. Many times it seems they only know how to treat one or two things, and not everything so your main issues end up being put on the wayside as well. I know going to a Doctor who specializes like this is Good, and know some with Fibro who go to these type. I know it is definately something to consider.

Good for you and your husband. Don't you love it when someone wonderful backs you? I had fibro and my doctors told me there was no such thing. Just a made up condition for depression or unexplained pains. I went to an alternative healer in VT. He read my history. He ordered some tests. I had had undiagnosed mononucleosis which was part of my problem. I had gone to regular doctors who tested me for anemia and diabetes that runs in my family, but because I was over 30, they never tested me for mono. Then he looked at my medical history. 10 ear infections, given antibiotics and then the antibiotics gave me 10 yeast infections. That alone could trigger off fibro and here I had undiagnosed mono on top of that. He was wondering how I got out of bed in the AM. Caffeine pills like no doze and water near my bed. Took them an hour before I had to get up so I could get up. So he had me eat raw cloves of garlic to keep the ear infections at bay. One per meal (lunch and supper, OK, but breakfast? What a challenge). Didn't get any ear infections that year. Then he had me take ginseng and other herbs like wild yam. I gradually went off all but the ginseng. He asked me if I was depressed, I said,"No, but I will be if I don't get my life back. Unless I pop caffeine pills, I can't even get out of bed." He couldn't understand why on earth they wanted to send me to a psychiatist. I seemed happy enough to him. It was a long road back. Other people went to this Doctor and we were comparing notes. 100 units of ginseng for one, 250 for another, I had 500 and they couldn't believe that. We were all buying out ginseng at a co-op. So the best things my Doctors that I had originally could have done was tell me it was all in my head. The best thing I could have done was go to an alternative healer. I'm not saying any of this would work for any of you. I couldn't do ginseng if I wanted to right now because I have high blood pressure. Ginseng, in some people like me, makes their pressures go higher. I was very lucky. He specializes in Fibromyalgia. He wasn't going to but everyone was going to him when regular doctors couldn't help. Mine was the worst he had seen. He said that normally he tells people he can cure it. But in my case he wasn't so sure,but he could at least give me more of my life back and that he did. He was really cool. NY frowns on alt healers. In VT about half of the Doctors there are dual certified as alt and regular doctors. So in NY we have to be careful, they might be quacks. But in VT most are good. Some more of my fibro is back, but I think it came back with the cancer. But he really did give me a lot of my life back.

I needed to read these words today, because right now I am feeling quite frustrated and wondering what it is going to take for this to all be over. I know many times I am not in control, God is, but just wanting more of this to be over. I have been trying to get this all under control, and even looking for different doctors now as we speak, and one day wanting to wake up and feeling better about it all.

Thanks for the encouragement my friend, and I know many are Praying and believing for Good things to come from this. I know I should post more of an update, as their are a couple of discussions I would Love to start in the next day or so. Just feeling quite frustrated now for sure. As for Chocolate, I have been using a shake that helps with weight loss, etc. I have been seeing good results with. It is a shake that tastes like a Cake and you can mix it with any flavor you wish or drink it plain. I usually use sugar Free chocolate pudding and it is helping crave my need for regular chocolate.

Hang in there, Tina. It's a challenge, I know, but fretting only makes it worse. Try to find something to distract you from the pain, worries. I used to listen to Christian music all day long (& still do) when all I could do was lay in bed, do some light reading, & work on other hobbies when I can. How's the wound now? Last I heard, it's almost gone, that should be encouraging. Don't hesitate to speak to your conditions, and command it in the name of Jesus, to end. That's putting your faith to work. Other are praying with you too, don't forget. By the way, read once you love chocolates. Did you know there are ones made without sugar, specifically for diabetics? Can't recall the name I saw at a store, but I think there are several brands being sold now.

What makes me Mad, is when they are Diabetic, and will judge me on everything and when I have to take Insulin, etc. just for eating something when in turn these are the same ones drinking a reg. lemonade or Pepsi, and not caring if this increases their BG levels, etc. Or the other one always saying I need to walk more to keep my Blood pressure down, etc. not understanding right now with the Vein problems, the wound not healing right and the Fibromyalga there are days when walking more than I have too is not something that I can really do.

Personally it would be nice if there were more people out there who I could relate with and talk too. There are a few who I can talk with, but no one really who has been where I have been so they can relate. It makes it frustrating when so many are quick to judge to where if it was not for my beliefs in the Power of Prayer and how that can help change a situation, it would be a hard world to live in sometimes.

Definately the Truth there. People do not understand, and always the First to judge. Unless they have walked in my shoes, how are they really to know? I know personally being proactive and keeping on top of things for me is a Good thing, and staying focused on God and praying for things I need is what has helped get to where I am at today even when it not always easy.

Well, when you have someone who is a Diabetic always telling me one minute what I should and should not eat, and criticizing me because everything I eat raises my Blood sugars to where I need to take Insulin, and then only about a week later see her drinking a Lemonade, and a Reg Pepsi in about 3 hrs. time never stopping to think about the sugar content, and then never testing herself. Then when she does Test she laughs because her meter reads high, which means her Blood sugar is over 500, and then laughs about it saying it is no Big deal. She will take care of herself and take some meds when she gets home. She says she is not a pill pusher and does not need meds? When I tried to say this is not good and she should not be laughing, she got defensive and said I was trying to threaten her. So if this is talking BAD about someone, I guess I should never care if people are trying to kill themselves before my eyes. (No, I am not upset with your comments, just making a statement about the Hell I have to put up with to feel this way.)

It is so hard when you are around others who do not always seem to understand and who might be Quick to judge and criticize, but at the same time if they have never walked in your shoes, how can they relate and understand? They just need to remember to think twice before saying things though.

So True, and then these are also the same ones when they are extremely high with Blood Sugars, etc. laughing about it, and acting like it is no Big deal or they will take care of it when they get home, and they are OK, but they were the ones telling you what to or not to eat, etc but of no concern with worrying about themselves, while having a Regular Soda, etc. in their hand as well.

Thanks for these words of encouragement my friend. Even though you wrote this a while ago, I needed to read these today. I can relate with the why don't you stay home and collect Disability, etc. as I hear it every day with what I am going thru. But I know and believe it is thru Prayer, and everyone's prayers I continue to move on and things are getting better. Always keeping a Prayer for you as well.

Yes, personally it is sad when people tend to look at something, and try to make a comment on it, not really understanding what someone is going thru, and when in turn most of the time they are doing things you would like to say "HEY, you are not one to talk... Examine your own life first, and then talk." They often are the ones who try to make you think they know everything when in reality their life, even sometimes Health wise is way messed up more than mine.

Well, Prayer is the only answer especially with a situation like I am going thru lately at work. I know God is in control, and hopefully I end up not regretting some of the recent choices I have had to make as well.

Personally the people who do not always understand, usually it takes them getting sick with something before they themselves can relate and quit judging you all the time. But even them sometimes unless they have had the chance to walk in your shoes, many will never understand.

Well, it has been interesting and a learning experience for sure. There are many out there who are always asking why I never consider Disability, and many that cannot believe I can do so much. Then there are others who say I need to trust God more and not let things bother me so much. Personally it is going to be a Struggle but I know with Gods help I can get thru. Just might take a lot of patience as well.

I think personally the problem is sometimes people think they are helping but usually only doing it in ways that are being a little judgemental and not always understanding everything that you really are going thru. They could very well be scared to even imagine it, so they end up treating me or you Bad not realizing they are really doing that.

i think most people (unless they are going through it) have no idea and are scared of what they cannot control so they treat you badly.

Personally to me, Disability would be a cop out, and I would loose my home, etc. Plus the medical benefits I have now are way better than anything disability could offer especially since I am married. Yes, this pain with the Fibro and having the chronic wound that is taking a while to heal is frustrating at times, but I know God is in control. And I enjoy working and trying to get my Business going. So it keeps me moving forward even days I really hurt.

I sure can relate many times with the feeling cheated, and Doctors unaware of the pain and such we have to go thru, and not able to find Cures to help this. I know between the Chronic wound being stubborn and no one able to find a reason that makes sense why, and having the fibromyalga as well as the headaches it can be hard. But I continue to keep strong, and do what I can while continuing to know and believe God is in control.

Yes, I have discussed the medications that I am taking for my fibromyalga and it has remained the same amount. Have been put on a water pill which has been helping some with the swelling but still dealing with other issues, so still not sure what will be the Best option out there. I guess only time will tell.