Better Days Ahead For My Brother...Hopefully

@simone10 (54180)
Louisville, Kentucky
July 21, 2016 6:00am CST
My poor brother. He hasn't been feeling good lately. He's had a lot of body aches and his hip and hand have been bothering him a lot. This past weekend, his hand hurt him really bad and it was all swollen. I finally talked him into going to the doctor. They took a lot of xrays and said he either has arthritis or rheumatoid arthritis in his hand and in his hip. The knuckle on his middle finger is bone on bone, no fluid at all. The doctor referred him to both a orthopedic doctor and a rheumatologist. The ortho doctor appointment is in September and the rheumatologist appointment is November. Quite a while to have to wait. His hand has been giving him a lot of pain and last night he was a little emotional. He was saying that he didn't know if he could stand this kind of pain for the rest of his life. He is only 48 years old. I told him that once he saw one of the specialists, they would give him medication to help. I have rheumatoid arthritis and know what he is going through. I was very emotional when I was first told that I had RA. I didn't want to believe it for a long time and then when I finally accepted it, I was depressed and kind of mourned for the person I used to be. All of this is normal and I tried explaining to him but he doesn't like to show his emotions and kind of shrugged it all away. At least he has me to talk to. I didn't have anyone at the time it happened to me. I can help him get through it and hopefully let him know that he is not alone.
19 people like this
19 responses
@Juliaacv (56320)
• Canada
21 Jul 16
I hope that the doctors can find the right solution to allow him to better manage his condition. Many of us live with chronic illnesses, how you deal with it has a lot to do with your outlook on life and perspective. Personally, I try to be thankful for what I can do, and the medications that I take that control my issues, and not focus on what I cannot do. And on some days that is hard.
3 people like this
@Juliaacv (56320)
• Canada
22 Jul 16
@simone10 You're probably better able to help your brother if you've gone thru this like you have as opposed to someone like myself who has always struggled with health issues. I hope that your brother can lean on you and gain from what you'll share with him.
1 person likes this
@simone10 (54180)
• Louisville, Kentucky
22 Jul 16
I feel like you do about being thankful for what I can do but it took me a long time to get to that point. I pretty much went through all the stages of grieving before I was able to look at things from a different point of view.
1 person likes this
@simone10 (54180)
• Louisville, Kentucky
23 Jul 16
@Juliaacv I hope he can too. I really feel for him and what he may have to go through.
1 person likes this
@jaboUK (64346)
• United Kingdom
21 Jul 16
The fact that you have gone through (and are still going through) a similar thing must surely help him, as he knows you understand. Though perhaps it makes it worse as he's seen your constant pain. As you say, it's a long time for him to wait to see a specialist. Sorry about that.
3 people like this
@simone10 (54180)
• Louisville, Kentucky
22 Jul 16
He got a phone call from the rheumatologist office yesterday and they are going to try and get him in the office in September instead of November. It's still a wait but not as long a wait.
2 people like this
@jaboUK (64346)
• United Kingdom
22 Jul 16
@simone10 September isn't that far along Sharon - we are nearly in August now.
2 people like this
@simone10 (54180)
• Louisville, Kentucky
23 Jul 16
@jaboUK This is true. I'm glad that he may not have to wait until November.
1 person likes this
@rebelann (117244)
• El Paso, Texas
22 Jul 16
Daddy had RA and I recall how swollen his hands and feet would get, he was only 50. He, like your brother, never once complained but just looking at him I could tell he was in pain.
1 person likes this
@rebelann (117244)
• El Paso, Texas
22 Jul 16
That's just awful @simone10 I hope they can help give both of you some relief from it. Hopefully they'll find a cure for it soon.
1 person likes this
@simone10 (54180)
• Louisville, Kentucky
23 Jul 16
@rebelann A cure would be wonderful as it would not only be able to cure RA but all the other auto-immune diseases as well.
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@simone10 (54180)
• Louisville, Kentucky
22 Jul 16
I'm afraid that he does have RA. His hand was swollen really bad and he couldn't use it at all.
1 person likes this
@BelleStarr (61463)
• United States
24 Jul 16
I wonder if it is inherited in your family? I would have thought that his regular doctor would have given him the pain medication at least a mild one to help him deal with it.
1 person likes this
@BelleStarr (61463)
• United States
25 Jul 16
@simone10 Yes but there are lots of pain medications that aren't addictive, it seems he should get something.
1 person likes this
@simone10 (54180)
• Louisville, Kentucky
27 Jul 16
@BelleStarr They suggested ibuprofen. Ibuprofen is great for a lot of pain and inflammation but it doesn't take the bad pain away.
1 person likes this
@simone10 (54180)
• Louisville, Kentucky
24 Jul 16
Yes, on our Mom's side. Our grandmother had RA also. He went to the Little Clinic that is in Krogers. They did xrays and everything but the wouldn't give him anything for pain. Kentucky is very strict about prescribing pain medications due to all the addicts.
1 person likes this
• United States
21 Jul 16
bless his heart :( i hope that he also gets to visit with a nutritionist - such'd do ya both good to help combat much'f that. i can totally relate to the sense'f loss, the frustration 'f not bein' able to live's one did. seems the cruelest'f blows, but sometimes 'tis a door that's opened to a new, diff'rent path. one's attitude's a lot to do with the transition.
2 people like this
@simone10 (54180)
• Louisville, Kentucky
22 Jul 16
You are so right! It took me a long time to get to the point of having a different attitude. I grieved over the person I used to be and was so afraid that I would end up in a wheelchair one day. Like I said, it took a long time but I have overcome those feelings and try to be thankful for the things I can still do. I just have to be here for him and let him know that I support him and understand.
2 people like this
• United States
22 Jul 16
1 person likes this
@JudyEv (382240)
• Rockingham, Australia
21 Jul 16
I used to get quite depressed when aches and pains reminded me that my best days were over. It was a kind of mourning. And looking forward to a lifetime of chronic pain would make anyone emotional. I hope he gets some help with the pain soon.
2 people like this
@simone10 (54180)
• Louisville, Kentucky
23 Jul 16
@JudyEv This is so true. They think it will never happen to them. Well, I didn't think it would happen to me either but it did.
1 person likes this
@simone10 (54180)
• Louisville, Kentucky
22 Jul 16
You are right, you do mourn for you old life. Everyone with a chronic disease usually goes through it.
1 person likes this
@JudyEv (382240)
• Rockingham, Australia
22 Jul 16
@simone10 It's to be expected isn't it? And yet you can never seem to impress on the young the need to look after their health. They just don't want to know.
1 person likes this
@GardenGerty (169488)
• United States
25 Jul 16
It is not surprising that he may have rheumatoid arthritis. I am glad you are there for him.
1 person likes this
@simone10 (54180)
• Louisville, Kentucky
27 Jul 16
It runs in the family on our mother's side so it's very probable.
@jobelbojel (36796)
• Philippines
23 Jul 16
I hope he gets better soon and yeah the appointments are like forever to come but he will definitely feel better with medications.
1 person likes this
@simone10 (54180)
• Louisville, Kentucky
24 Jul 16
Thank you! Fortunately he has been feeling a little better over the past two days.
• United States
21 Jul 16
Only 48 and arthritis? How old were you when you were diagnosed? Did he do a lot of physical labor? I know injury can cause arthritis earlier in life. It's good he has you to talk to. I know whenever I have a life change or something wrong, it is wonderful to talk to someone who has been there.
1 person likes this
@simone10 (54180)
• Louisville, Kentucky
22 Jul 16
It runs in our family. I was 52 when I was diagnosed with RA. He really hasn't done a lot of physical labor over the years but he was in a wreck and had to have surgery on the leg that now has arthritis in the hip.
1 person likes this
• United States
22 Jul 16
@simone10 I am so sorry, I can't imagine. I'm 52 and I do have some aches and pains, but nothing like RA.
1 person likes this
@simone10 (54180)
• Louisville, Kentucky
23 Jul 16
@Carmelanirel2 With RA, it can sit there dormant and it takes something traumatic to bring it out. For me, it was menopause. I had a really hard time with it and it wasn't long after that I started hurting.
1 person likes this
@sofssu (23660)
22 Jul 16
48 is pretty young to have RA. I hope your brother can handle the pain until he meets the doctors. Its takes time for the diagnosis to sink in and acceptance to come about.
1 person likes this
@sofssu (23660)
23 Jul 16
@simone10 I hope so too.. sending good wishes and prayers for your brother.
1 person likes this
@simone10 (54180)
• Louisville, Kentucky
23 Jul 16
I was 52 so when I was diagnosed. It happened after I went into menopause. The doctor thinks that is what triggered it. My brother has been feeling better the last couple of days so I hope that it lasts for a while.
1 person likes this
@marlina (154103)
• Canada
21 Jul 16
Those diseases are hard to deal with. I am surprised that your bro has to wait so long for a specialist.
1 person likes this
@marlina (154103)
• Canada
22 Jul 16
@simone10 That's good news for your brother and I am glad.
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@simone10 (54180)
• Louisville, Kentucky
22 Jul 16
The rheumatologist office called yesterday and they are going to try to get him an appointment for September instead of November.
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@LadyDuck (502573)
• Italy
21 Jul 16
I am very lucky not to have this kind of problem, but I know that it's very painful. You are right, your brother is lucky to have you to talk to.
1 person likes this
@LadyDuck (502573)
• Italy
22 Jul 16
@simone10 My mother and my brother have this problem, I got my genes from my father, in his family nobody had arthritis.
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@simone10 (54180)
• Louisville, Kentucky
23 Jul 16
@LadyDuck My brother and I have different fathers but the same mother. It runs in our mother's side of the family and I guess that is where we get it from.
1 person likes this
@simone10 (54180)
• Louisville, Kentucky
22 Jul 16
You are very lucky not to have this problem. It can be really awful at times with ups and downs. I try to keep a positive attitude but it's not always easy. I know what he is and will be going though so I will be here to support him.
1 person likes this
• United States
21 Jul 16
I hope the doctor can give him something for the pain or a remedy to fix it. Hopefully he doesn't have RA but he's lucky that he has you to help him through it
1 person likes this
@simone10 (54180)
• Louisville, Kentucky
22 Jul 16
I hope he doesn't have RA but my gut tells me he does. He has nodules on his fingers that usually show up with RA.
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• United States
22 Jul 16
@simone10 that's sad to hear
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@Lucky15 (37391)
• Philippines
22 Jul 16
Glad that she has a loving sister. Helping him getting through
1 person likes this
@simone10 (54180)
• Louisville, Kentucky
22 Jul 16
I will do my best to help him. I didn't have anyone at the time I was diagnosed and it was really hard without any support.
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@OreoBrownie (3755)
• Commerce, Georgia
21 Jul 16
Oh good thing he's getting it seen about. Arthritis can be terrible. I have it, but RATHER can be even worse because the body is attacking itself.
1 person likes this
@simone10 (54180)
• Louisville, Kentucky
22 Jul 16
It can be terrible. I didn't have any support when I found out I had RA. I don't want my brother to feel the way I did and I want him to know that I am here for him and that I understand.
@PainsOnSlate (21845)
• Canada
24 Jul 16
He is luck to have you to help him, once he sees a doctor, I think life will be better, at least with meds.
@acelawrites (19272)
• Philippines
21 Jul 16
It is good you are there to support him knowing how hard it is to have RA. Hope he gets well soon.
1 person likes this
@simone10 (54180)
• Louisville, Kentucky
22 Jul 16
I think it does help him to know that he can come to me.
@ilocosboy (45155)
• Philippines
21 Jul 16
you help him, he help himself, then everything will be better.
1 person likes this
@simone10 (54180)
• Louisville, Kentucky
22 Jul 16
I will do my best to help him as much as I can.
@JustBhem (70555)
• Davao, Philippines
24 Jul 16
I also experienced this kind of pain. These are the side affects of my treatment. And all I do is have a pain killer to reduce the pain. Sometimes I have patches to ease the pain.