An update on Yvonne's appointment
By Jimbo45
@Ineeddentures (32326)
May 21, 2026 2:25pm CST
Ok, as promised here is an update on how Yvonne got on today at her appointment.
She has not got cancer.
But
The blood tests did show what we already knew from tests done in about 2008
Yvonne does Indeed have Cystic Fibrosis - not a carrier , but both faulty genes making it the full blown condition
We already knew. We knew her heritage, her bloodline and everything else the blood tests all those years ago showed up.
The combination of faulty genes Yvonne has , is very rare - shared by only a handful of people globally.
What difference will knowing this make to Yvonne and her future care. Well one tablet per day extra because most of the medications for CF and COPD overlap.
The doctor was very pleased with her today.
Her saturations were 98%
Her BP normal
Her Heart rate excellent
And her weight quite healthy although up on 6 months ago
So that's the update
Thanks to everyone who responded to my last post.
Yvonne saw what was said and has asked me.to thank you all.
The image is from 2004 in Amsterdam
Those were the.days....
17 people like this
16 responses
@RasmaSandra (97364)
• Daytona Beach, Florida
12h
I have a similar photo of me and my hubby. You two made such a cute couple, I am glad she is doing well and I send her many blessings and wish her the best.
4 people like this
@RasmaSandra (97364)
• Daytona Beach, Florida
12h
@Ineeddentures unfortunately there are not too many because we would be taking photos one of the other.
3 people like this
@Ineeddentures (32326)
•
12h
It's the only photo that survived our move down here.
I'm sure that you treasure the photos.you have with you and your husband in them
3 people like this
@Ineeddentures (32326)
•
11h
Well Tammy
Obviously glad it's not cancer
But a bit confused being told something we knew for certain anyway
2 people like this
@allen0187 (59162)
• Philippines
11h
This is good to hear man.
Prayers up for Yvonne.
3 people like this
@Ineeddentures (32326)
•
11h
Thanks
I am one relieved .an tonight, that's for sure
3 people like this
@Juliaacv (55997)
• Canada
11h
@Ineeddentures That really must make you wonder.
I hope that she remains healthy as long as she can.
4 people like this
@Ineeddentures (32326)
•
11h
It is better news than we expected
But we didn't expect to be told something we already knew - which the doctor didn't seem to be aware of
4 people like this
@Ineeddentures (32326)
•
11h
@Juliaacv
I told the doctor if he read the screen it would mention Armenia and a Jewish Heritage
He did, and nodded.
4 people like this
@wolfgirl569 (134742)
• Marion, Ohio
11h
That is great news as you already knew about the CF. Glad they can help manage it.
3 people like this
@Ineeddentures (32326)
•
11h
I think somewhere someone was negligent - how could thos CF diagnosis from all those years ago not be on her current records
And why when it was discovered all those years ago was it never followed up
Especially given Yvonne had 2 children die because of Cystic Fibrosis
Questions need to be answered
4 people like this
@wolfgirl569 (134742)
• Marion, Ohio
10h
@Ineeddentures That is some very good points. Sorry about losing the kids.
2 people like this
@sallypup (69015)
• Centralia, Washington
6h
@Ineeddentures That's so terribly sad.
1 person likes this
@MommyOfEli2013 (89098)
• Rupert, Idaho
12h
Well that is good to hear that it is not the C word....
Sorry that she has CF though, I've heard of it, but don't know too much about it...
and that is a sweet photo of you two
3 people like this
@MommyOfEli2013 (89098)
• Rupert, Idaho
12h
@Ineeddentures Well that sounds like a fun time...
3 people like this
@Ineeddentures (32326)
•
12h
@MommyOfEli2013
I didn't pay any heed to the filming
Then a lot of years after
Someone pointed out to me that they had seen me and Yvonne dancing on stage in a film lol
I have no idea which film
I was quite stoned that night
2 people like this
@Ineeddentures (32326)
•
12h
It's a good photo
We were just off of the dance floor.
The people filming asked us to kiss lol
2 people like this
@snowy22315 (207840)
• United States
13h
Sounds like everything is as good as it can be under the circumstances. That is surely a relief.
2 people like this
@Ineeddentures (32326)
•
13h
Ah well
Yvonne is almost unique lol
Only 4 other people on the CF database share her gene combination
Could be related, we are going to find out
3 people like this
@Ineeddentures (32326)
•
10h
Aye.
No Cancer is what it's all about.
That's the best news possible.
The CF, we have lived with that for 29'years
Yvonne has lived with it all of her life, and lost 2 children to it
2 people like this
@JudyEv (380310)
• Rockingham, Australia
1h
@Ineeddentures That's so sad. It must have been devastating. I'm so sorry. I understand treatment has improved quite a bit over the last decade or two.
@Ineeddentures (32326)
•
13h
It was diagnosed 29 years ago.
This was just more in depth
It's not an issue
But the COPD will continue to be
1 person likes this
@thedevilinme (5204)
• Northampton, England
9h
My sister had that. Op jo. She may need a wee baggy for a month- that is a wee baggy.
2 people like this
@2ndchances24 (12080)
• Cloverdale, Indiana
9h
Glad to hear she doesn't have cancer & doing good
as she can with the illness she does have I hope she has done her
research on how to help get better cause that's what helps.1 person likes this
@Ineeddentures (32326)
•
9h
This one doesn't get better.
But medication improving means sufferers do live longer.
@LooeyVille (52)
• United States
12h
I need to research more about cystic fibrosis. Please take good care of Yvonne
2 people like this
@Ineeddentures (32326)
•
12h
Always have
Always will.
It's a really interesting condition.
Killed two of Yvonne's kids
It's not going to kill Yvonne
2 people like this
