Healthcare reform...my granddaughter could have died tonight  |
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| I wasn't going to start a discussion about this because I'm too emotionally raw right now but I feel compelled to share this on behalf of my granddaughter and everyone else like her. As some of you already know my granddaughter has type 1 diabetes and dealing with her illness has been difficult ever since she was diagnosed 6 years ago. She had a birthday on April 16th. She turned 19 and is no longer covered on her mother's employer provided insurance. Because of the seriousness of her illness my granddaughter, her mother and I have searched high and low for some kind of insurance coverage for her. She is uninsurable. Denied again and again because of her preexisting condition and the fact that she has been hospitalized many times because of it. Katie works 2 part-time jobs because she has not been able to find a full time job and that is not due to a lack of trying. She's willing to do anything in exchange for employer provided health insurance because of her medical condition. She also goes to college part time. Her insulin and testing strips alone cost over $200 each month. But, that's minor compared to what happened today. Today my step daughter went home for lunch. My granddaughter was home and she was very, very sick. Her sugar was through the roof, she was barely able to talk and was having trouble breathing. She hadn't told anyone that she was having problems for two days. She tried to deal with it herself because she didn't want to incure any expenses that she couldn't afford to cover on her own and she didn't want to burden anyone in the family even though so many of us have insisted that we will help with all of her medical expenses. She was unable to walk on her own and, when my stepdaughter picked up the phone to call 911, my granddaughter managed to say "No, too expensive" but the call was made anyway because my stepdaughter was scared that Katie wouldn't make it if she drove her to the hospital. So, now my granddaughter is in ICU, in full blown DKA (Diabetic ketoacidosis), which is very serious, with a resting heart rate in the last hour of 130, which is an improvement over what it had been. Had my granddaughter been able to continue to hide the fact that she was sick...had she gone to sleep tonight without her mother knowing that there was a problem then, according to the doctor, she would not have made it through the night. This has never happened to us before. We have never almost lost this sweet, beautiful, loving young woman to this disease because she was afraid to seek help when she needed it. Many of the folks who post here are against healthcare reform. There are lies posted about people losing their medicare coverage and half truths about taxes. But, in the end, this is about people...living, breathing people who are loved by their families and who are forced all too often to choose between what they need to survive and what they can afford. So, I ask all of you...is there any humanity left in this country? If I started a discussion tomorrow about my granddaughter being found dead in her bed would you still stand by your convictions? A 19 year old girl should not die from a treatable illness because she can't affored to go to the hospital in the greatest country in the world. That shouldn't even be a consideration. | | | | | |
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1. pumared (509)
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2 years ago
| | diet is not good | | | | | | |
spalladino (11857)
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2 years ago
| | Hi pumared. Katie's diet is fine. She's not new to this illness. Her case is difficult...it has been from the start. | | | |
pixeltwistr (421)
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2 years ago
| | You can have a perfect diet and that doesnt make the diabetes go away. Yes it is important to keep very close track of your diet when you have diabetes but there will still be complications. My brother has diabetes and no health insurance because exactly like your grand daughter no insurance company will touch him...and he takes very good care of himself diet wise but because of the fact that he is very tall (7'1) he has some very serious complications with it and we know he probably wont live much longer and it drives me nuts because he lives alone and if he passed out or something no one would even know. Can your grand daughter get medicaid? I am sorry to hear you are going through this....I know all too well just how awful it is to be very sick but still not go to the hospital because you are worried about the cost....no one should have to deal with that! Im praying for your grand daughter!!! | | | |
| shibuuya_yuuri (50)
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2 years ago
| | your great country should make sure to provide the people cheaper medication and hospitalization. it is awful to know that someone died because people and especially the government is very insensitive to the people's needs. what is the use of paying taxes if people could not ask for service in return? | | | |
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2. cyrus123 (3255)
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2 years ago
| | I am so sorry that your granddaughter is so sick! Please know I will be praying for her, you, and your family. I just wish there were some kind of healthcare coverage she could get. So many people are against what Barack Obama is doing about healthcare. If he had a family member suffering like this, I bet he would think twice about what he's doing. I just hope and pray your granddaughter will get better. | | | | | | |
spalladino (11857)
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2 years ago
| | Thanks cyrus. This legislation will soon make it possible for my granddaughter to be covered in the high risk pool. While I don't like the mandate that requires everyone to participate, I do believe that something needs to be done. I appreciate your prayers and your kind thoughts. | | | |
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3. chrissa808 (188)
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2 years ago
| | I am so sorry to hear about your situation and that your grandaughter. I am so touched by your discussion. I am just new here in the USA, and I have heard about the new health care reform. Honestly, I still do not understand it that much, and because of your topic, am interested to understanding it more. I am sad that your grandaughter could not get any insurance because of the existing diabetic condition she has. Although I am knowledgeable about this, but am pretty sure there are other programs/insurance-like policies that will cover your grandaughter. You are all in my prayers. | | | | | | |
spalladino (11857)
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2 years ago
| | Thank you chrissa. All prayers are definitely appreciated. Unfortunately, there are no programs available for my granddaughter as long as she's living with her parents. Household income disqualifies her for government assistance. This is why we need reform in this country. | | | |
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4. k15682 (169)
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2 years ago
| | Spall, So sorry to hear about your granddaughter. I agree with everything you said, hopefully this HC reform will at least be an answer for so many people with no coverage until something better is done. It's not a perfect bill but it's better than what we had. Good luck you you and yours. | | | | | | |
spalladino (11857)
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2 years ago
| | Thank you k. I don't think this bill is perfect but it's better than what we currently have. The thought that we could have lost Katie at 19 years old over money upsets me so much. The hospital bills are going to be outrageous and I still worry about the next time because of them. My husband has already said that he'll cash in a CD if necessary and pay all of it off so she doesn't feel the need to hesitate the next time. | | | |
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spalladino (11857)
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2 years ago
| | Thanks for the info, lelin. I'll check it out first thing in the morning and hope that there are no strings attached. Some insurers that my stepdaughter had found, which looked promising at first, had some pretty stern conditions...like they wouldn't pay out for the first six months and you had to stay healthy during the probation period. I do appreciate your concern. This was the first and only time that Katie has tried to hide the fact that she was ill and it scared all of us badly. | | | |
lelin1123 (9052)
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2 years ago
| | You are quite welcomed. How is she doing now? I hope she is doing better and that you can find someone that will insure her. Take care and and God Bless. | | | |
spalladino (11857)
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2 years ago
| | Katie is doing much better and was released from the hospital this afternoon. Thanks for asking Lelin. :) | | | |
lelin1123 (9052)
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2 years ago
| | I'm so glad she is out of the hosiptal, she was there for a long time. May God keep her well. Any luck with insurance companies? | | | |
spalladino (11857)
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2 years ago
| | Nothing definite yet. My stepdaughter is working on some things up there though. | | | |
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6. Catkin (302)
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2 years ago
| | My thoughts are with you, your granddaughter, and everyone involved. For being as increasingly common as it now is, both types of diabetes (and the small range of people in between) should be more well understood than it seems they are. Or, what I suppose I mean is, more well explained. My mom was diagnosed with diabetes nearly ten years ago, learning only then that the fact she had gestational diabetes 15 years earlier while pregnant with me made it likely she would develop diabetes about 15 years later. She's not quite a 1 or 2, her endocrinologist calling her more of a 1 1/2, but can still certainly experience diabetic coma or the complications of very high blood sugar. When she first learned that she was diabetic, it was a big shock and hit her pretty hard; and yet it was only because she did a lot of reading and research on her own that she learned ways in which she could manage her blood sugar levels throughout the day (at that time she had no need of insulin). Her doctor somehow failed to mention that daily exercise is very beneficial, or how to properly manage her diet to exclude foods that would raise her blood sugar (aside from SUGAR, that is...). I hope that doctors today are doing a better job of counseling patients on what they can do, aside from just testing their blood and injecting or taking insulin daily. Part of my reason for responding is that I wanted to ask you what your granddaughter does day to day in light of her diabetes. Does she take insulin? Would it be easier for her to manage her blood sugar levels if she were able to add exercise to her daily schedule (if possible, and if it is not already present)? Does she eat as she pleases or take into consideration the carbs and sugars she might be consuming? I don't ask any of this to seem insensitive, I'd really like to be able to offer helpful advice if possible. I wish you all well, and yes, I think that health care ought to be available to all in need. Health and well-being is something that should not be denied anyone. | | | | | | |
spalladino (11857)
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2 years ago
| | Hi catkin. Since Katie was diagnosed her life, her family's life and our lives changed drasitcally. Like your mother, my stepdaughter and I learned all we could about her disease and how best to manage it. Katie's diet is very strict and dependent upon what her body is telling her and she has a great doctor to guide her. She does exercise and is very active in one of her parttime jobs. She has rheumatoid arthritis, stomach problems and some neurological problems secondary to her diabetes...which were caused by the disease. When they come to visit us here in Florida I have a long list of foods and drink to have on hand for her. Any and all advice is more than welcome so if you have some suggestions that you'd like to offer please add me as a friend and we'll talk more. Thanks. | | | |
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7. urbandekay (6799)
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2 years ago
| | This is insane in a supposed civilised country; first class medical care free at the point of contact is the mark of a civilised country. I do not understand why Americans are not up in arms demanding the same standard as we enjoy in Europe. We watch aghast in horror, American television shows where people are asked for insurance details before being treated in casualty departments of hospitals. Best wishes for your granddaughter urban | | | | | | |
spalladino (11857)
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2 years ago
| | Thanks urban. I think part of the problem is that so many Americans benefit from group health insurance plans through their employers which cost them very little and offer great benefits so they don't really understand what those without this benefit go through. Hospital emergency rooms will give you minimal treatment and kick you loose if you don't have insurance. Because Katie's condition was life threatening they had to admit her but what if she hadn't been so sick? Would they have sent her home before it was safe to do so? I wouldn't have questioned this six months ago when she was still insured. | | | |
urbandekay (6799)
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2 years ago
| | I see, that is very short sighted of them, they are really paying for it through less wages. Our National Health Service provides like for like treatment at a much lower cost than yours all the best urban | | | |
pixeltwistr (421)
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2 years ago
| | And this is kind of a perfect example of what Obama was saying about the health care....right now we have to do it the way your grand daughter did it...we have to wait until it is a life or death situation and then go to the emergency room...if you go any sooner they WILL turn you away! But the fact is that if the hospital had treated her as soon as she started feeling sick it would have been a ton cheaper than waiting until she needed intesive care .... There used to be a day when people became doctors because they had a desire to help people....now its just about the bottom line and if you cant pay they dont care about you! | | | |
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8. jb78000 (3486)
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2 years ago
| | this is absolutely awful spall, and i am really sorry about what you all have been going through | | | | | | |
spalladino (11857)
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2 years ago
| | Thanks jb. I'm going to be dragging tomorrow. It's 3:30 in the morning here and my husband is so stressed that he can't sleep so I'm being a good wife and staying up with him...but not for much longer. This scared the he11 out of us...all of us. | | | |
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9. Wizzywig (4056)
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2 years ago
| | I think its appalling that a persons medical care should boil down to a question of money & I am so grateful that we have our NHS. It is not perfect and many people complain about it but, your granddaughter would have been able to ask for help as soon as she began to feel unwell, all her medication & treatment would be free. I feel so sorry for this brave, selfless young lady and wish her a speedy recovery. I know that DKA is serious and requires fast action. I dont know exactly how your proposed healthcare reforms would run but, surely any system that saves the lives of ordinary people has to be good doesn't it? My very best wishes to all of you | | | | | | |
spalladino (11857)
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2 years ago
| | Thanks wizzywig. There are far too many people like my granddaughter in this country. Reform is long overdue. | | | |
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10. marklloydbinar (2850)
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2 years ago
| | First, I Don't have any idea regarding your Country's health care program but only i can say and offer is my Prayer. Hope that your Daughter will recover in less time. Just have faith and be strong, anything will be in place. God bless your family. Here in the Philippines, it's so difficult to have an illness and to become sick because most of the Hospitals don't accept patient to be admitted if you don't have money for downpayment which is ilegal but don't why they are still doing that. Many people died without proper treatment from the hospital. Very Sad, but we have to face the corrupt Government. | | | | | | |
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